Hosted on MSN

Changing the paradigm on hypermobile Ehlers-Danlos syndrome: Connective tissues don't tell the whole story

Recent research from the Medical University of South Carolina laboratory of Russell Norris, Ph.D., challenges the notion that hypermobile Ehlers-Danlos Syndrome (hEDS) is an isolated connective tissue ...
journalgazette

Listening first: How patient insights transform Ehlers-Danlos research at MUSC

As Norris listened to her describe how much remained unknown about EDS, including its underlying genetics, the seed was planted for a new way of thinking. Focusing on a large family with multiple ...
EurekAlert!

Changing the paradigm on hypermobile Ehlers-Danlos Syndrome: Connective tissues don’t tell the whole story

Dr. Cortney Gensemer (left) and Dr. Russell Norris (right) in Dr. Norris' laboratory at the Medical University of South Carolina. Recent research from the Medical University of South Carolina ...
KVOA 4

Listening first: How patient insights transform Ehlers-Danlos research at MUSC

It often first presents during adolescence, a factor Norris Lab researchers assert has contributed to the disease not being taken seriously by many physicians. Most types of EDS are caused by defects ...
WBOC

Listening first: How patient insights transform Ehlers-Danlos research at MUSC

Determining exactly how many people have EDS is difficult. The condition includes 13 different subtypes — most of them extremely rare. However, the most common subtype, hypermobile EDS (hEDS), is ...
Fairfax Times

Listening first: How patient insights transform Ehlers-Danlos research at MUSC

(BPT) - Imagine seeing multiple doctors for multiple symptoms — from joint instability, debilitating fatigue and chronic pain to digestive issues, migraines, even heart problems — only to be told your ...